Friday, February 19, 2010

Kathryn Morgan Goodson Arrives

Kathryn Morgan Goodson was born on Feb 17th at 4:51 pm. She weighed in at 6lbs 2oz. She is a beautiful little girl. Mom is feeling pretty good and recovering nicely.

Kat has two heart defects. One is tricuspid atresia which we have known since we started our blog. The other is truncus arteriosis type 2. The doctors have seen each one separately, but not both in the same child. There are only 14 documented cases of this in the world. Kathryn is the 15th case. The cardiac team and the surgeons are going to meet in the next few days. They will decide when they are going do surgery. They are optimistic and she is now breathing on her own. She is stable now. We got to hold her and rock her for quite a while.

Cate, Kat's big sister, has been passed around the neighborhood. She has been having a blast with everybody. She gave big hugs and kisses to her baby sisters pictures. Cate will be a great big sister! We would like to thank all of our friends who have helped us take care of her. We are truly amazed by the out pouring of support.

We will try to update the blog as much as possible, each step along the way. Thank you again to everybody for their thoughts and prayers. We definitely need them!

Thursday, February 11, 2010

10 Days and Counting.....

With the countdown still a-go, we had another good round of appts today. Her Nonstress Test looked very good yet again, and she's definitely a baby-on-the-move which is also very very good. Dr. Byrne is letting us skip Tuesday's NST, since she's really not worried as much anymore about the arrhythmia. We're still dilated at 2cm, but we're now 50% effaced, so our induction on the 21st may not require as much "help" to get things going labor-wise. And there's no indications that we'll be going earlier at this time.

She had one of the Neonatologists come in to explain a bit more of what we can expect once the baby arrives. First, we should get to hear a screaming baby once that first breath happens -- believe it or not, I was worried about that. Then, they'll pass her through the "window" and they'll get 2 central lines going through her umbilical cord, since that's where they can get the biggest lines in. However, it doesn't always work, so she may have to have a line her arm. Through those lines, they'll give her glucose (in place of breastmilk) and the prostaglandins (the hormone that will keep a fetal heart duct--the Patent Ductus, from closing). Since prostaglandins can hinder lung function, she may need to be intubated and on a ventilator, but she may do fine on her own -- it's 50/50. As well, they'll give her an echocardiogram at that time and hopefully, they won't find any further complications. That will be her first hour and fortunately, we'll be right next door in the delivery room while all this is going on.

And if she requires oxygen, they won't give her 100% of what a normal baby needs; rather, they'll keep her at or below 80%. Normal oxygen levels tell the Patent Ductus that it's OK to close (as it would with a normal baby--usually within 10-12hrs of life). But since the duct is what will be helping to circulate/oxygenate her blood until she receives the heart shunt, they keep her oxygen limited, and give her the prostaglandin hormone to keep the duct open.

So, after that initial hour or so, they'll get her over to Primary Children's and into the Cardiac Unit of the PICU -- if there isn't a bed available, they'll keep her at University Hospital (with me) in the NICU until a bed opens. Once they have her at Primary's, she'll be assessed by the Cardiac Team, and we'll find out who her surgeon will be. They anticipate her surgery will be 5-7 days from her delivery, but if they find any serious complications, they may do it sooner.

She won't be allowed breastmilk until after her surgery; since she'll be on glucose and other things in place of milk, she won't drop the usual few pounds that other newborns do. And, she'll be pumped full of fluids during surgery, so they said we can expect her to look quite bloated for a few days after. Once surgery is over and she's stabilized, they'll be able to see how well her digestive system is doing and if she's ready to tolerate breastmilk. And of course, there will be a number of things they'll be on the lookout for once her surgery is complete - like the chest swelling we saw with little baby Ammon during our PICU tour.

So, that's the "clinical" update. Personally, we're trying to imagine and prepare for what the upcoming weeks will bring. Dr. Byrne started me on Zoloft about a week or so ago; it's takes 2-3 wks to work into your system and I have to say's draining me! Of course, getting up around 5-7 times to pee every night doesn't help; I tend to spend at least one of those pee breaks lying in bed worrying for about an hour or so. Funny enough, Cate's late night visits to mommy's bed have been welcomed (we're trying to get her transitioned to the big girl bed, but she ends up in my bed by about 2am). Somehow, cuddling with her in those "wee" hours has been therapeutic (HA, get it ..."wee" hours?! Geez I crack myself up). And good thing Daddy is sleeping downstairs on the couch ...with all the late night activity, he'd never get any sleep! Speaking of Daddy, he recently learned that I am not the only gaining baby weight, so he's started back to the gym. I think it's quite unfair but in less than 2 wks, he's already dropped 4lbs (that will take me a month most likely). I'm so glad he's doing that; he's worried about me, the baby, how Cate will do through this, let alone the worries of work. He's good at coping, but this is an awful lot to tackle. I'm glad the gym is proving to be a good outlet for him.

I guess that's it for this update! Please keep the prayers coming; we appreciate any and all we can get!

Friday, February 5, 2010

Another week of tests DONE!

Well, I couldn't be more proud of my little bundle -- Dr. Byrne told us this week's Nonstress Tests were the best she's seen from us thus far! And, we've dilated to 2cm ...though baby hasn't engaged yet. SO, she's keeping our 21st Induction Date until baby says otherwise. But, she's looking good, head's still down, and she's definitely a kicker. I can't wait to meet this kid!

Now Bob and I are just trying to grasp the fact that we have 2 weeks left to go! Bless his heart, he's been helping so much -- cleaning carpets, scrubbing the floors, foot rubs, the full gamut. He's the bomb! Even though I'm jealous, I'm hoping he will take the time for himself and go snowboarding Sunday morning (before the football game, of course). I worry about his stress level through all this, I mean, an evening cocktail after work only does so much. Thankfully, he started back with the gym this week; he and Cate have been hitting hard (she LOVES their daycare/play gym). I hope he'll be able to keep it up while the baby's in the hospital.

On the baby front, we got the names of the two possible surgeons who will be taking care of our baby: Dr. Burch and Dr. Kaza. The awesome moms with our Support Blog recommended both quite highly, so I feel a lot more at ease regardless which one we get. But, I have to say ...I am a little more hopeful to get Dr. Burch, since he trained in Louisville! :) If any of you want to read up on them, their bios are at: --go to the Surgeons link. You can also read about our Cardiologist, Dr. Menon, on that link.

Kevin, our buddy who's a Safety Officer at Primary's, is going to give us the full "insiders" tour next week. It will be nice to kinda know our way around the hospital. It kinda seems like it's gonna be our 2nd home for a while.

Well, that's the update for this week! Hope everyone is set and ready for a great Super Bowl weekend ...have an iced cold beer for me!!!